Special Rachael Ray Show Today

If you get a chance today, watch The Rachel Ray Show on ABC.  See local listing for time.  Around our area it airs at noon.  Winter is Rachael's guest to talk about Team Winter and what she is doing about her dad's cancer.

http://www.rachaelrayshow.com/show/segments/view/running-her-father/

Thanks for your prayers,

Dawn, Michael & Kids

Where did December 2008 Go?

Well, we are back after taking a month off from the Blog.  Sorry to those we left hanging out there.  This was a very important month to get through for our family.  Lots of doctors visits and yet another hospitalization,  compounded the chaos that normal occurs around the holidays.  This was an extremely important Christmas, to be able to spend it together as a family and to make life as "normal" as possible given these extraordinary circumstances.

We needed a month off after learning Michael has metastasis (spread of his cancer) not only to the liver but the lungs and lymph nodes.  This obviously was not the news we were looking for on his last CT while hospitalized at the University of Michigan in December.  After having some time to ourself as a family, Michael has made the decision to keep up the fight by getting into a Phase 1 Clinical Trial at Karmanos Cancer Institute in Detroit.  What is a Phase 1 clinical trial. A typical Phase 1 trial evaluates how a new drug should be given (oral, IV etc.), how often and what dose is safe.  It can be the first time a drug is given to humans, or it can be another initial use of the drug, such as the first time it has been given in combination with a standard cancer therapy.  There are no placebos used in Phase 1 trials.  Phase 1 trials provide the initial pieces of critical information about the effect of a new drug on humans which is necessary  for further clinical development.  This type of trial is only conducted with cancer patients.  We are hoping that they find a drug that might slow down the progression of his cancer or miraculously cure his cancer.  However, we realize that more than likely this will ultimately help other people in the future.  Michael feels he has nothing to loose and possibly something to gain.  We are still undergoing testing to see what treatment he might receive.  We anticipate the new treatment will begin in several weeks.  

On a bright note, the Team Winter Christmas Party was a huge success.  Thanks to all those who came out to say "hi" to Michael and the family.  Over $2000.00 was donated to Team Winter which will all go directly to the Prostate Cancer Foundation for furthering research.  Thanks to all those who donated their time and proceeds.

The kids continue "life" as usual.  They are skiing and swimming almost everyday.  They got their dad out on a snowmobile a few weeks ago and continue to keep him as active as possible.

 Michael has good days and bad days.  The bad days consist of extreme fatigue.  The different aches and pains are manageable at this time.  We appreciate all of your prayers. 

Good Health to our extended family in 2009,

Michael, Dawn, Yukon, Winter, Magnum & Ruger

Web MD Health Hero 2008

Well, here it is....just announced in the November/December 2008 Web MD Magazine.  Winter is the youngest recipient in the history of Health Heros.  You can also go online to see the online article about her recognition-see right column and click on picture.  As you can imagine we are so incredibly proud (an understatement) of what Winter and her brothers are doing.  This award has already made 2 million viewers online aware of what Team Winter  stands for.  One small baby step towards Winter's goal of having a blue ribbon (prostate cancer) to match every pink ribbon (the oh, so visible breast cancer).  To see her state her goal in front of 250 of the leading Prostate Cancer Researchers at Lake Tahoe, go to the video    www.vimeo.com/2020098 

For those who wish to follow Team Winter in more detail (which so many of you have already done) go and join Facebook.  There you will find Winter Vinecki, Group- Team Winter and Fan Page- Team Winter.  This is where everything related to Team Winter will be published, including upcoming events.  You can also get there thru www.teamwinter.org and clicking on facebook.

Michael had his tube in the liver replaced with a larger tube last week to help drain the liver better, which has caused great discomfort as one can imagine.  His energy level is wiped out and he has only a few good hours a day right now.  We are able to get care for some of these issues nearby so we don't have to run back to Mayo right now.  

Our Love,

Dawn, Michael & Kids

 

Adding Tubes

Well.... Mayo went well a week and a half ago.  As well as can be expected. The liver abscess seemed to be healing well so they decided to pull the final remaining tube Michael had. (that was short lived..)  CT didn't show any  new tumor, which is a welcome comfort to Michael for the time being.  There is a new spot, very small- 5-6mm, on the lung that they aren't quite sure about.  It is too deep to biopsy so they are just going to watch it.  Last Friday Michael started to have a lot of pain in his liver again so I had a CT done which showed his cavity in the liver that previously had the tube in it, had filled back up with "yucky" stuff.  It was significant enough that the Dr's at Mayo thought it would be best to reinsert the tube.  Luckily for us it could be done locally so we didn't have to travel back to Mayo.  It was a rough weekend for Michael, the tube causes a lot of irritation and pain.  NO hunting for Michael.  Guess the wife has hunting duties to fill the freezer for the family.  And this snowplowing thing should be easy... just drop the blade and go like h----, at least that's what it looked like Michael did last year.  These hallucinations Michael has on pain medicine are getting pretty good....who needs late night TV!!

Sorry about the humor, but sometimes that is all you are left with to deal with the day to day.

We are holding off on any reattempts at Chemo at this point.  His liver is not healthy enough to be tortured by that and neither is Michael.  The kids are doing great.  Swim season has started and it is so exciting watching the boys tackle this new adventure this year.  All four kids are swimming, including their 2 cousins.  Between them, they can almost completely make up their own relay teams.  Soon all four kids will be either skiing or swimming every night and every Sat/Sun.  How fun is that as a parent??

Team Winter is up and running.  Incredible things have happened in the last month which I will post soon (yeah, I know....define soon-----soon in my book is "when I get to it").

I just wanted to briefly take 10 minutes out of my sleep to update you on Michael's status.  He is sleeping as we speak and probably wishes I would get off the computer.  I have had many requests recently to update the blog so here I am.  WE appreciate the huge volume of prayers that are going out, the homemade healthy food people are sharing with us and the love that surrounds us on a daily basis.  We are grateful for every day.

Dawn, Michael & Kids

Back To Mayo For Check Up

Sorry About the "Lost Month"!

Time flies when you are trying to get the kids in a routine for school and with after-school activities, trying to hold a full time job down and oh yes, helping a husband recover and battle metastatic prostate cancer.  That is all in a day at the Estelle/Vinecki home.  No news is good new they always say and is pretty much where we are at right now.

Michael has spent the last month training himself to void all over again, so yes we have potty training going on in our house once again (I thought we were done with that after Ruger). Michael did not like the idea of cathing himself 6 times a day, so he has managed to get his bladder working again.  This is an amazing feat if you consider how much damage was done to the area around his bladder.  It may take him ten minutes to  empty his bladder, but hey it beats the alternative way of emptying the bladder.

The last several weeks have been the best weeks for Michael since before surgery.  He is finally able to get off the couch and move around and do small tasks around the house.  The hair started growing back in since he is off chemo right now but he got too many comments about his hair looking like goose dander so he shaved it off again.  Michael was able to get some much needed R&R in Las Vegas last week for a few days.  He managed to survive being dragged up and down the strip numerous times.  The highlight was seeing Elton John live in concert.

Michael is back out at Mayo this week getting more follow-up CT Scans done to look for recurrence of tumor.  They were able to pull his drain from his liver this morning so he no longer has any drains.  He only has his colostomy and a PICC line (for medications when needed) left.  We stopped his daily antibiotics last week since his liver infection and blood infection seem to be resolved. 

Winter has managed to round up some of the best researchers in the world for prostate cancer after her recent trip to Lake Tahoe.  She was a special guest at the 15th Annual Prostate Cancer Foundation Scientific Retreat.  She presented them with a check for prostate cancer research and gave a brief speech to all of them after they all watched her video from the Florida triathlon.  It was a very powerful day for prostate cancer research.  A video of this event is available at www.vimeo.com/2020098  These researchers are committed to trying to help Winter's Dad anyway possible.  We will be looking into clinic trials and newer up and coming treatments depending on the results of his CT scans.

Michael will be starting to put some entries on the blog.  It will be good to start hearing things from his prospective.  Much of the activities of Team Winter can be tracked thru www.teamwinter.org 

Winter can also be found on facebook and under "groups",  Team Winter can be found and you can join as a "fan" to view what is up and coming for Team Winter.

We thank all of you for your continued thoughts and prayers,

Dawn & Kids

THANK-YOU

Winter and Scott Zagarino,
Founder Athletes for a Cure

September 27th 2008

To everyone involved with the 2008 Inaugural Athletes for a Cure Triathlon:

Winter and her family would like to personally thank everyone for making this event such a success in so many ways, but most importantly by helping raise awareness for prostate cancer. Winter cannot tackle prostate cancer awareness alone but through Team Winter and Athletes for a Cure, the possibilities are endless. The outpouring of love to her and our family has been beyond belief. Throughout the race individuals were introducing themselves to Winter, Michael and myself and telling their stories of how prostate cancer had affected their lives. This event is not just a race; it is so much more than that. It is about making a difference, not setting limits on oneself, giving unconditionally and having a passion for a great cause.

The staff at Disney, the race volunteers, race directors and organizers, race participants and spectators showed incredible compassion and support throughout the entire weekend. We could not even begin to thank everyone; especially those who could not be there at the race in person, but so graciously gave donations and words of encouragement. Most importantly, none of this would have been possible without the founder of Athletes for a Cure, Scott Zagarino.

So many new people have come into our lives from this one single event. We will continue our passion (the multisport life) in support of Athletes for a Cure and the Prostate Cancer Foundation each and everyday. We can’t wait until the 2009 2nd annual AFAC Triathlon. A special thanks goes out to all the athletes who raced under Team Winter. We hope all of you will be back next year to help Team Winter grow in both numbers and fundraising.

I want all of you to know that Michael smiled more during that one weekend then in the entire last four months since being diagnosed and treated for metastatic prostate cancer. That is something only all of you could accomplish and we are thankful for that.

Who do you race for?

Thanks a Million,

Dawn Estelle
Michael Vinecki
Winter, Yukon, Magnum and Ruger


*We send our Love and we will stay strong to help Michael fight the fight.
TeamWinter.org will be up and running soon.

Athletes for a Cure Triathlon 2008 Video

Go to http://vimeo.com/1853805