After 5 long days of travel and no internet capabilities, we have finally landed the RV at Fort Wilderness Campground at Disney in Florida. I must say it was not an easy journey getting here. The kids and I left last Thursday morning with the RV and trailer with bikes in-tow and headed to Mayo to try and bail Michael out of the Hospital for a little R&R. Michael's blood infection is doing well and we think we found the source. On CT he was found to have a liver abscess (infection) from an old ablation site measuring about 6 cm. They then placed a tube into the liver to drain the abscess, which now puts him up to 5 tubes and drains. He has to flush his liver 3 times a day, no not with beer, with saline although he has been tempted. While finding the abscess they also found 3 areas of recurrence of cancer off of the previous ablation sites. He will have surgery a week from now back at Mayo on the liver. Hopefully, if all goes well, he will only be in the hospital for a few days and head back to Gaylord. The Doctors all thought it would be good for Michael to get away for a week to forget about hospitals. His antibiotics are being shipped to the campground here at Disney by UPS and I give them to him daily. Our RV is like a little hospital on wheels, fully stocked with all the supplies Michael needs or could possibly need. Internet has been a royal pain in the butt, just like the drain that Michael has in his butt. It took Yukon, my 11 y/o son to finally find us access. I tried updating the blog on my i-phone and that didn't go to well. The tube in Michael's liver has really put a damper on his mobility. Athletes for a Cure has provided a golf cart down here for Michael to get around and to be able to keep track of the kids on race day. Winter is training hard in the early morning heat to aclimate to the high humidity. She will do the kids race on Saturday with her brothers (1 mile run- 6mile bike- 1 mile run) and will be the "featured athlete" on Sundays big race with a 1,000 other competitors. She will swim- .9miles, bike 24 miles and run 6.2 miles. Some pro triathletes will be on hand to lend her support. Winter's only concern about the whole race is "ALLIGATORS". She has already touched base with pest control asking them to get the gators out of the swim course! She was assured that she will be well protected. She also has heard of some large snakes (poisonous water moccasins) seen around the campground which should make her run splint darn fast.
Michael is finding all the shade possible to keep his head from sweating and getting sun burnt. A friend graciously gave him a Greenbay Packers hat which is working well.
Hopefully, we will keep everyone a little more updated over the next week, if internet doesn't fail us. Right now I have to sit outside in one particular spot to get connection.
We Are Holding Up Well,
Dawn, Michael & Kids
6 years later...
3 years ago